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DISCLAIMER
We wanted to take some time to talk about Hyperemesis Gravidarum, it’s not morning sickness. It’s like it’s own hyper breed of screw you up while you’re pregnant. Our hesitation has been that we don’t want to sound like we are (especially me) complaining. Because I’m not. Listen, it’s hard and I’ve definitely cried a few times, but I also am fully aware that each day has a blessing if I just look for it. Sometimes it’s just knowing that being sick also means baby is still alive and that’s good enough. But let’s be honest, the information you can find just doesn’t give a real picture of what it’s really like and Cade and I feel like not only will the raw truth help educate others and help them better understand us, but more importantly, maybe this will help get the word out that we desperately need research and answers for something that is a real beast to go through. I’m going to be blunt. I’m going to buck up and totally not let myself be private like normal so please forgive me if it makes you uncomfortable. So many women don’t realize that what they are going through is not normal and they need extra care.
*Nausea and Vomiting*
Let’s just start off with the most obvious part about morning sickness and HG. To say that nausea and vomiting is a part of HG is an understatement. Anyone who has ever been sick while pregnant knows it stinks, but this isn’t the regular stuff. The nausea is unreal, and trust me once I’m further along I get the privilege of regular morning sickness and this is not even on the same chart. I feel it everywhere. It’s debilitating. Just rolling over or sitting up sends me heaving my guts up. I feel it in my skin and bones and it doesn’t make sense but it’s true. The vomiting is powerful. A good day I may throw up 3-6 times a day, a bad day I could live in the bathroom because 5-10 times an hour I’m throwing up.
If you’ve thrown everything up how can you continue? Ha! Your body hates you and it will find a way. I throw up my saliva, stomach acid and then the best part is the dry heaving. It is so painful and every place on my body, especially my back and stomach is so sore I can hardly stand it. My body wants to keep at it so much that often I cannot catch my breath which makes me start to black out and I can’t tell you how much I hate that.
Well that all stinks but it doesn’t stop there. Since you’re vomiting your body decides to really go after you and make it violent. Violent vomiting means it’s coming up so hard and fast it’s rocketing out your nose. Yup. I’m disgusting. And it’s so incredibly painful! Your throat and nose become raw from it which leads to bloody noses for me and as I’m sure you can guess, triggers my nausea and makes me throw up more.
*Side Affects of Vomiting*
There’s obvious weight loss. And I mean a lot. I’ll probably be praying for humility if you tell me you lost weight while pregnant only to reveal it was like 5-10 pounds over a month. That’s nothing. I promise. My weight plummets to the 80’s and we are fully aware of what a blessing it is to not be worse. This is where that good ol’ NJ feeding tube comes in. Right now I’m set to get it Friday, but let’s all pray for a miracle on that one. Being thin has additional challenges.
Let’s talk muscle atrophy. My bony body is so weak I cannot walk on my own much. My legs crumble under me and my arms are useless. If you’re already wondering, my husband walks me everywhere, helps me shower, dresses me and blows my hair dry. He is my hero. I used to try so hard to do it on my own and keep strength as long as I could, but it was a huge mistake. Not only does it make me ten times more sick, but I just can’t do it. I’m embarrassed to admit that Cade has found me crumpled on the floor unable to make it back into bed or back to the couch multiple times.
The aches and pains come too. Your body is so thin everything hurts everywhere, but if you try to move you’re throwing up again. I can’t stand my bony knees touching or how my pelvic bones jut out and provide no cushioning. Every night Cade sits by me and rubs my legs to try to ease the pain. You get really used to pain, no not used to it, but familiar with it. HG is painful. And that’s not even getting into the stabbing pains in your stomach that just wont end.
Dehydration. I don’t even want to go there because these days everyone seems so quick to head in to get IV’s. The truth is we go through major dehydration. Like hooked up in the hospital for days and days trying to bring things back. And have you ever gotten an IV while incredibly dehydrated? It’s actually painful, not a poke, like it hurts and often your veins have become so flat they can’t get in. Last pregnancy we had to ditch the arms since we couldn’t ever get a successful poke. So far, even when it takes being poked quite a few times we’ve managed to keep it in my arm, what a blessing. When you’re already sick being poked over and over and that burning that comes from it not getting in gets really old really fast. Being dehydrated also messes with you. I can’t focus or think clearly and my eyes especially wont focus. You don’t feel human and can’t imagine what it felt like to feel “normal”.
Constipation. Shoot me now. Not only are you dehydrated, pregnant and not eating much which all lead to constipation but the meds have the side affect of constipation too. If you’ve ever not gone to the bathroom for 2-3 weeks you know what I’m talking about, it’s horrible, painful and so annoying. Stabbing pains and uncomfortable bowels are no joke and no fun. It’s dumb.
*The Things You Need To Know*
I wish you could visit, but not right now. Talking and breathing make me sick. If you stop by for a visit I will pay for it. And that’s really screwed up because laying on the couch or in bed all day staring at the walls is lonely, depressing and boring. It’s actually one of the hardest parts of this for me. TV only works every now and again and then you can’t stand it so you go stir crazy. I desperately wish I could have a visit from someone. But then someone shows up and the energy it takes to communicate destroys me. You may visit with me for 10 minutes and then I’ll spend the next few hours vomiting harder than ever. I pay for it and so please just wait for me to tell you that I’m up for a visit and then keep it short.
I go to the doctor every week to weigh in. It’s hard. It’s the day I end up the most sick because I’m up and about, but it’s the day that offers peace to us that we are ok and so is baby so it’s worth it. We do an ultrasound to check on baby. We know I generally end up with a small placenta and very low fluid which is never good, but we keep a close eye on things. If you see me coming and going somewhere, please be kind and let us get there and home quickly, in other words, just because I’m out doesn’t mean it’s because I feel good and it’s time for a visit.
Insomnia has become the new normal. Ugh, I hate this part. I do not sleep. Actually, this pregnancy is better than the last because once in a while I will doze all night, but then I’m right back to laying awake all day and night which I’m sure you can imagine is horrible. The day already lasts forever but then you have to lay there all night too. And as you may have guessed, not sleeping only makes you more sick, and feeling down. Sleep is such a blessing as is every other little thing we take for granted such as a drink of water.
Sensory issues drive me crazy. Noises, people touching me, smells and more make my skin crawl and make me physically ill. Yes, one more thing to throw up over. It’s not just my husband and people that stink to me, someone opens the pantry, the front door, brings in books, and the list goes on and I can smell it. The water in the shower is like torture but not showering is worse.
NO FOOD SOUNDS GOOD. Trust me, I’ve tried it all, more than you could recommend. I get asked all the time what sounds good and nothing really is the truth. I don’t crave anything. In fact, just the thought of trying to eat makes me want to crumble. Yes, of course I’ve tried ice chips, even under my tongue. I try nibbling because I know I have no choice but it is literally torture for me. I hate eating. I hate thinking about it. Nothing takes the edge off either. I’m glad others find relief from sour, spicy, cereal, gum, lemon candy etc. I don’t. I promise. I wish I did. Yes, I’ve tried all of the medications, but none are the miracle you say they are. And this all becomes mentally depressing and frustrating. It is horrible trying to make yourself eat and worse to try think of something you might be able to gag down. Cade and I go over and over different foods trying to find something I’d be willing to try. Dry crackers or food in a totally dry mouth is torture but anything juicy is just as awful as my body seems to hate juicy or fluids. It’s so frustrating.
Starvation is real. I may not have died from it but it’s no exaggeration that I understand it better than I ever thought I would. At times I’ve gone so long without water that I’ve desperately wanted it in a way that’s scary. In fact, I’ll become so crazy for it that when trying to take a sip of water (every bit counts) I literally lose control and I’m suddenly guzzling it. I can’t stop!! And before I can even finish swallowing it’s all coming back up. I can’t tell you how frustrating that is. And now you’re so dehydrated your mouth tastes and smells like metal and is so dry you actually don’t swallow well, there’s nothing to swallow! Food is different. After going so long without it you suddenly don’t care anymore. My stomach wont even growl. It takes Cade constantly trying to get me to eat and in the hospital I’ll admit that the cafeteria even kept calling to try to get me to order food. I try really hard now to not think, but just do as I’m told because I literally don’t care anymore. (Dr Haskett is not going to be happy) In fact, I feel better with nothing in me than with food. Eating all day actually makes me more ill than keeping my stomach empty and then occasionally nibbling especially in IV therapy. And yet, I do care as occasionally watching people enjoy things, even as simple as a bowl of fruit makes me depressed that I can’t join in and I have to fight to feel grateful instead of letting those feelings in.
If you see me somewhere, church for 20 minutes, the dr, etc it has taken me all day to get there. It’s a huge process that makes me more sick than ever. And then I last a short time and I’m out of there. Why? Because 1. I’m afraid I’m 2 seconds away from throwing up in your lap, and if you were to follow me out to the car you’d see how many throw up bags I keep in there because I lose it every time. 2. I cannot stand to be upright for a minute longer. I feel dizzy, hot, claustrophobic (holy cow that is a real thing people!!!!) and so nauseous I can’t handle it anymore. It is a huge sacrifice to get ready and for me that only means showered. I haven’t done my hair or makeup in over 2 months and I pretty much live in pajamas.
*The Truth*
The truth is, this stinks. You cry until you’re so dehydrated tears don’t come. Some days or even weeks are so hard you want to lay down and die. Not actually die, but you don’t know how you can possibly wake up one more day and do this all again. You can’t be a mother and the kids need you. People around you complain about “feeling so tired” or nauseous and if only they could throw up like you, or nauseous for the whole thing and you cry because you are tempted to punch them in the nose and you know that you need more humble pie, but you almost don’t care because what they don’t get is you’re feeling everything 10 times worse. Throwing up offers zero relief. In fact, it’s a good day when you wish you could throw up. Every day you’re fighting to survive and to have that sweet baby survive. Every day lasts a lifetime and while you’re usually feeling better by 20 weeks many of us hang on to the nausea and “morning sickness” throughout the rest of pregnancy. You just wouldn’t know it because we know how much worse it could be so a complaint is never uttered. In fact, my 9th month I was totally sick again and by the time I was in labor I was so utterly exhausted from vomiting all day and night I felt too tired to push. Though I did because heck yes let’s get that thing out and move on!!!
Hyperemesis often carries PTSD at the end. Our second pregnancy I went through that and while I know military has it far worse I’ve also come to know that it’s so real and you can’t escape it. Certain things trigger such enormous anxiety and panic attacks and I’m praying I wont experience it again this time. In fact, as hard as things are, in some ways this pregnancy is better than the last. It is a miracle and I cannot deny that.
The most important truth is that we chose to do this. And we can do it. We know we have become better because of it and we knew this was what we were supposed to do. The truth is, it’s all worth it and I can’t complain at all because in the end we get to take home a sweet baby and that is an incredible miracle. The truth is, we are fully aware of what a blessing it is. Probably more than others do because we’ve had to fight for it.
I’m on baby #2 and I have never felt so seen. Thank you for putting into words the way that I feel, and how hard the struggle legitimately is. I’m only nine weeks in and the thoughts of giving up are already creeping in, but then I look at my little girl and remember how badly I want her to have at least one sibling. It’s so hard to see the light at the end of the tunnel sometimes. I needed the reminder that the baby is so worth it.
Oh friend, what a journey you are on. Thank you so much for commenting as it helps me feel seen in all that I’ve been through as well. I love that you are remembering why you are doing this and that it is so much about giving more love to someone else, to your daughter. It absolutely will be hard but ohh how strong you are! You were born to do this! Keep finding good things and keep giving yourself love and compassion. You are a gift to your children!
Thank you for this. I shared this post on FB almost 3 years ago, and came across it again today. I found out this morning that I am pregnant with my 6th, but I already knew because the HG started yesterday. I don’t get as sick as you (mostly because I vomit a LOT less), but I get everything else. The sensory issues; the depression; the hanging on for the baby; the inability to eat, think about food, or even care; the PTSD. I could barely comprehend a complete thought, let along carry on a conversation. It’s so much more than just morning sickness. So many little things that I don’t even think to tell people most of the time.
Bless your heart Melissa! You are a warrior! I’ll be praying for you and that sweet baby!
I’d love to hear more about how you handled the moments of feeling hungry, but being so nauseated you knew it wouldn’t stay down.
I’ve been lucky not to throw up quite as much as you’ve mentioned, but it’s still enough that I land in the ER for more fluids and dehydration. And the weight loss is not ideal for sure. Did you force yourself to eat? I’m finding that to be ridiculously difficult, but I know I “need to try.”
Hi Hannah!
Oh I completely understand what you mean! It’s always so smart to try to eat when you can, during iv treatments were the best time for me to try water, ice or even small nibbles of something. Mentally it’s so hard! However, I will say that forcing it often made me vomit more which led to more lost weight and fluids so don’t ever force it to the point of making yourself more ill. I’d set up a weekly IV therapy session at the hospital and focus your eating and drinking during those times that medication and fluids are entering intravenously. Otherwise it could be time for feeding tubes if nothing is helping you eat and keep a little something down. Good luck, thinking of you!
xoxo
I am dealing with all this right now! My first pregnancy in 2009 – nauseous all day and night for 4 months but was able to eat. At that time I thought it was terrible but was I in for a surprise a few years later! My second pregnancy in 2012 – I couldn’t keep even a sip of water down, throwing up 25 times a day was actually a good day for me. Nothing helped. Everyone gave me their home remedy tips that did absolutely nothing for me. My dr prescribed me zofran because I was so dehydrated. It worked for maybe a few weeks but then I got really constipated. I couldn’t poop for 3 weeks. During that time I thought it was normal but when I look back now and read up on hyperemesis, I realize it wasn’t. Because of my experience with my second pregnancy, I decided to not have any more kids. I thought I could never deal with that again. Then last year (2021) my husband and I decided we wanted one more. I miscarried and became so depressed that I almost couldn’t even focus on being sick. I lost the baby at six weeks but carried the baby for another seven weeks after due to a complicated miscarriage. I chose to try miscarrying naturally but after the fourth week my dr didn’t want to risk infection so she put me on cytotec since I was trying to avoid a d&c. Well that didn’t quite complete the miscarriage but still ended up in the er due to pretty major blood loss. I had to end up getting a d&c in the end. My husband and I decided to try again this year and I am almost 10 weeks. This has been the worst pregnancy and I can totally relate with almost everything you’re saying, even down to dreading showering because of the smell of the water and just the shower itself. But I feel more sick because of not showering. I am a very clean person and my house is always spotless but I cannot do much. My dirty house is making me even more sick. My dr prescribed me something new, it’s called Bonjesta, and it has really helped me to keep food and water down! The nausea and smell and sight and sound aversions don’t go away but I am able to keep foos and water down! It does make me drowsy but I can eat and drink and that’s what’s important. But I still have to muster up all my energy just to shower or do dishes. After I am exhausted and feel so sick. Do you have any suggestions?? I feel like depression is also hindering me from getting up and brushing my teeth or showering or cleaning. But I feel like the depression is because of the state of my house. It seems so easy to just get up and clean but then the moment I get up, I lay back down on my couch. Do you have any suggestions, any tips, that helped you??
Hi Alex,
I’m so sorry to hear that you are in the thick of all of this HG stuff. I wish I understood better how something like this can be so crazy for so many women yet there’s not a lot of research to understand it. It sounds like that new medication is completely worth it which I’m so happy to hear exists! I don’t know that I have a lot of advice as it sounds like you’re doing everything right. One thing that I can say for certain is that getting ivs every week helped a lot as well as trying to be mindful about when I needed to speak up that things were too bad. If your weight is low enough and you’re struggling to eat it might be time for feeding tubes. It’s also really hard but very helpful to find a trusted group that can help with kids and housework so that you have one less thing for your body and mind to process. The more you worry the sicker you’ll get as it’s all very connected.
Again, I wish I could just zip you to the finish line but oh how worth it this will all be! xoxo
I’m 10 weeks pregnant and understand your article so much, it just home, on the way I’ve been feeling, and sadly still have a long away to go! Not only do I have HG and all the wonderful things above that you mentioned, but I’m also growing twins which has been crazy I’ve lost in three weeks 25 pounds and I highly doubt that’s going to be all. My family doesn’t think my sickness is toooo bad and so I sent them this article and I tell everyone please read, so you know how I’m feeling. I just keep remembering I gotta keep pushing on, because I know these little babes are gonna be awesome to have and be great siblings to our 4 year old.
Bless your heart Jamie!! It is so very isolating. I pray that you have a good doctor who supports you and understands your situation. And twins!! How exciting! Know that you aren’t alone! There will be people who don’t understand, but I know that God knows you and is aware of your sacrifice and suffering. He will carry you and strengthen you along the way. All my prayers! Xoxo!
I’m 22 weeks still dry heaving to the point I’m dizzy 😵💫. Only way I sort of feel better is sleeping it off .
On drugs from my doctors at 4 weeks pregnant. Lost over 2 stone in weight been sick acid dry heaving everything! When I was carrying my 1st boy I had nothing this second boy OMG!
Since 18 weeks I can feel his in my tummy omg not motion sickness!!!!! When will be stop . Should of gone to hospital a few times but with covid I plodded on through it. Only drink out of a straw as I just can’t deal with it !
Roll on Xmas day when he’s due xx
I just stumbled onto this, laying in bed after once again bring viciously sick. I’m 14.4 weeks pregnant and was diagnosed with HG at 9 weeks. A little more then two weeks ago I was diagnosed with Covid and the hg mysteriously faded away – now that I’m almost recovered it’s back in full force : no more eating or even drinking water. I see another IV in my near future. I’m getting so depressed. People keep asking me if I’m excited- how can I be excited where I feel ill all day every day? And you’re right about the PTSD. I had my first daughter 9 years ago and literally lived in fear of another HG pregnancy. This pregnancy was a surprise, and I AM happy to have another baby – I just can’t live like this for another 5.5 months. Thank you for this post – it makes me feel less alone…
Oh I am so sorry to hear this! My heart just dropped reading your experience because I absolutely understand. I promise that it’s so normal to feel this way and ohhh the strength you’ll possess to get through and the joy you’ll have when that baby is in your arms. You absolute were made to handle this. You absolutely are exactly who this baby needs. I’m praying for you! Xoxo!
I loved reading your post, because I know there’s women out there that can relate what some of us go through.
I am currently 36 weeks pregnant,and I am still vomitting, its been going on since week 5. It only became less frequent (3-5 a day) at week 32. I can not go to grocery stores, I miss having dinner with my husband, cooking etc. But I can not stand the smell of any food. It makes me so sad when people said, ‘aaaw nausea is part of pregnancy’… But they dont understand it is not nausea when you vomit 20times plus a day, can not eat for days etc. You are really brave for having more kids! This will be my 1st baby…but i can not go through it again!!
Bless your heart Janet!! It is so so hard! The more awareness we can get out, the better! I promise, life does go back to normal, but it’s a new normal because you have a new level of perseverance you never knew you had. You face life and trials with a new perspective. And you have a cute little baby to snuggle and experience life with. I’m praying for you these last few weeks! Congrats on becoming a momma! Xoxo!
Omg your words all sound so familiar! It’s so true when they say no one gets it. I’m a dr but drs take ur lightly. Just eat anything. I’m 15 weeks now and the vomiting is less. But I can’t eat. Everything smells so bad. Even things like perfumes and toothpastes. Nothing smells normal. I’ve had my days where I’ve cried because of the fear I’ll never smell normal again. Thank you for this
Bless your heart Noora! I know exactly how you are feeling! Even when the air smelled like nothing it smelled horrible to me! Hang tough! You got this! It will all be worth it! Love, hugs, and prayer to you and your sweet little one! Xoxo!